Going Home Again

We are going to try going home today. Hannah's eeg hasn't changed. She didn't have any more seizures. They gave her Keppra via IV and got it at a therapeutic level and they also have dilantin at a therapeutic level. we'll go home taking 250 mls' twice a day. We will remain on lamictal until the 23rd when we see the neuro. If she does well on Keppra then we will wean lamictal. The epi agrees with this approach. Sadly this is how it is. There is no cure for epilepsy so it's a guessing game when treating it. You start out on a med and a dosage and you just keep trying until hopefully you get to one that will control it. Sometimes, you will get control on a med for years and then all of sudden it'll quit working. It's so frustrating. So, hopefully keppra will work and we won't have any of the negative side effects that I fear. I'd love hannah to never have another seizure but at this point my goal is to get the status episodes under control. Seizures we can regretfully live with but status seizures we cannot. Please keep us in your prayers. We're exhausted. The only thing that keeps us going is prayers and the spirit of this little girl who fights this battle. I'm telling you, she is a HERO. She beats Tony Romo or any super star any day! They can't even compete with Hannah. LOL! She's incredible y'all. They came in to draw blood this morning and she was playing with the tech. Giggling and smiling and the woman had a needle in her hand! LOL! No, she's not crazy, she's just our happy go lucky lover of life princess! How can I let this get me down?