Monday, August 24, 2009

First Day of "First" grade

Well, today was Hannah's first day of "first" grade. I haven't cried yet but I've come close. She had a small meltdown as we were leaving. I think more because of the routine change than anything. She was fine once we got in the van and got to the school. Koolio and I took her to her classroom where she seemed relunctant to go in but did. There was an alarm going off in their room and it was a little annoying. They were waiting on a mant. man. They were all driving busses. I'm hoping they got it fixed pretty quickly because those kids will not handle an alarm going off over and over for very long. One of the little boys was crying the but everyone else seemed o.k. I asked the teacher to email me in the middle of the day to let me know how she is. I hope she does.

We went to the epileptologist last week. He didn't change anything at this time. He did say that he'd like to admit Hannah to the EMU and take her off her seizure meds and "force" a seizure they can record. :<( I know the information would be invaluable to them but man, it makes me soooooooooo nervous. We're just praying that she won't have any period and we won't need to find out what is going on. Unfortuantely we're still having those strange complex partials but nothing more serious than that since June. PTL!

Attached is a picture I took last night of Hannah ad Koolio sleeping. This picture was taken around 1 a.m. LOL! He's depressed right now because he's staying at home right now to give Hannah's teacher a chance to establish a routine before we insert Koolio. Hopefully it'll just be a week or two.

Monday, August 17, 2009

Snow White

Today we thought the world was coming to an end. Hannah broke her Snow White heels in half and she was UPSET! I did everything to distract her but she kept digging them out of the trash and tried to wear them broke. I was afraid the jagged edges were going to cut her feet. I finally IM'd David and asked if there was any way he could drop by Toys R Us on the way home to pick up another pair. He agreed to do it. I'm sure the last thing he wanted to do was go to a toy store and shop for Snow White shoes but he's such a great dad. She always gets excited when he comes home but when he pulled those shoes out she was HAPPY! I think he enjoyed making her smile and being the one to get to make her day! So, the world did not end and we are now on our second pair of Snow White heels. I'm seriously worried about what we'll do when her foot gets too big. If you have any low heeled slides you are going to get rid of, please give them to us. I think I'm going to have to decorate some with Snow White soon because her poor feet are going to grow faster than her little mind does. :<( I've been so excited that she's been playing with "girly" things lately.

We have an epileptologist appt tomorrow and then take Hannah to meet her teacher tomorrow evening. It'll be a busy day. Hopefully we'll get some direction as far as seizures are concerned. I'm a little concerned about the weight Hannah has gained recently. Since July. I don't know if it's her meds or that frumpy stage most girls go through around 8 to 10 yrs of age. We have a metabolic geneticist appt. on Oct. 1st. This stuff is all so drawn out.

School starts a week from today. The kids are ready. I'm not. I've had a hard time the last week or so. Billie ALWAYS got so excited for the kids when they started school. She bought them an outfit every year of their lives for school. I really need to go to Penney's and get the guys some jeans but I've just not been able to go in the store. I drove by it the other day and got so sad. It's just really sad to think that Kyle will graduate this year and she won't be there to see him.

Thanks for your continued prayers and support!

Thursday, August 13, 2009

Budget saving mom

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Wow! They just do not let me down!

This morning I met with Hannah's new teacher (Ms. Organ), Mrs. Duncan(principal), the new AP, and special ed director(Kathy Groppel). Hannah's new teacher is great. I can't wait for Hannah to get to know her. I'm always a nervous wreck but let me tell you....these guys have NEVER let me down! I always leave a meeting with them feeling confident that Hannah will be in good hands. I'm so excited! My Hannah gets to do the things she loves the most in a few! I'll post more soon. We have several doctor appt.'s in the next few days.

Thursday, August 6, 2009

Where to start...

I'm not even sure what I've reported. We had a bad seizure day on Tuesday. Those strange complex partials again. The epileptologist increased her tegretol and said if they didn't stop by today he'd admit her for another video EEG. She did well yesterday so hopefully the increase in meds helps.

Hannah has gained quite a bit of weight. She's not eating a lot. I think it's either her meds or she's just going through that frumpy stage. We'll have to keep an eye on it though.

We see the epileptologist on the 18th so I'll have news then hopefully. Still testing and trying to find answers and help.

Hannah's active and into everything. I am constantly on the hunt for my shoes. You'll see in the following pictures why. Hannah LOVES shoes. Especially mine. I think it's adorable that she wears my flipflops side ways.

Thanks for your continued support and prayers. Please keep them coming.